Shelter from the Storm: Caring for a Child with a Life-Threatening Condition

Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.

Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.

Author: Joanne Hilden, Daniel Tobin, Karen Lindsey
Binding Type: Paperback
Publisher: Da Capo Lifelong Books
Published: 12/18/2002
Pages: 240
Weight: 0.7lbs
Size: 8.72h x 5.34w x 0.56d
ISBN: 9780738205342